Grenzen aan de zorg; evaluatie van de besluitvorming rond het overlijden van 104 kinderen op een afdeling Chirurgische Intensieve Zorg

To analyse the decision-making process concerning withholding and withdrawal of life-sustaining treatment in children who died in a paediatric surgical intensive care unit.

Design

Retrospective evaluation of medical and nursing records from the period 1988-1992.

Setting

Sophia Children's Hospital-University Hospital Rotterdam.

Method

The evaluation concerned 104 children who died in the paediatric surgical intensive care unit during the study period. The causes of death were classified according to the classification proposed in a recent report issued by the Dutch Association of Paediatricians. A distinction was made between newborns and older children.

Results

In both newborns and older children, about half of the children had died because treatment was either withheld (4104) or withdrawn (53104). There were no cases of ‘intentional termination of life in emergencies’. The remaining children had died in spite of medical treatment that had been considered worthwhile.

Conclusion

The problems and guidelines suggested from the field of neonatology are applicable not only to newborns with severe congenital anomalies, but also to older children. Evaluation of the decision-making process should not be limited to medical-technical and nursing aspects, but should also include the experiences of the parents and the treatment team.